Celebrating a Change of Heart

Two years ago, the quality of my life was not great.  The core problem, the heart of the matter, the nitty-gritty of it all, was that my heart was not working properly.  I had developed a heart syndrome called tachy-brady. Sometimes, it is also called sick sinus syndrome.  The first time I heard my primary doctor say to me "I think you have sick sinus syndrome," I was clueless as to what it meant, but I knew it wasn't good.  In truth, she was the first to come up with this diagnosis, one that the nurse practitioner at my cardiologist's office dismissed.  By the time the GP, reading the same sleep study report that my cardiologist had received, made this observation, I already had an extensive file containing drugs tried, tests done, and procedures considered for troubling symptoms of arrhythmia.

A year before the final slump with a heart not functioning correctly, I had a heart ablation to correct tachycardia, a rhythm problem that the heart will sometimes develop that will cause the heart to beat too fast.  After the ablation, I felt wonderful and was able to carry on with my life until about six or eight months later when I again began to experience a wildly beating heart that would leave me exhausted and faint.  A sleep study was ordered to see if I was getting enough oxygen at night.  I wasn't, but adding oxygen at night didn't help my faintness and exhaustion.

 Diagnosing my problem was a process.  It wasn't enough to have a GP say that she thought I had sick sinus syndrome.  Diagnosis for me involved having a small device called a loop recorder implanted in my left breast. This miraculous little device allowed my doctor to see exactly what was going on in this heart of mine when it would decide not to beat properly.  I had the recorder fewer than two weeks before it was determined that I needed a pacemaker.  

Getting that pacemaker changed my heart, the way it beat, and it changed my life.  A pacemaker gave me my life back.  Today, two years ago the miracle of modern medicine allowed for a device to be implanted in my body which would monitor my heart and keep it from going too fast or too slow.  I can now walk longer distances, walk up hills, and I can go about the business of my life with few problems with my heart.  I am so grateful.

Two years ago, just before I received the pacemaker, I remember sitting in the my chair in the living room feeling quite sorry for myself as my husband went out for a long walk in the neighborhood with the dog and without me.  I remember that while he was gone my heart rate went down in the 30's and my blood pressure plummeted so low that I had to call the doctor.  He ordered me to get to the hospital.  It was Easter Sunday.  I did not want to go to the hospital with yet another heart episode, but I had no choice.  When my husband got back from his walk, he had to take me to the hospital.  They almost implanted the pacemaker that night, but finally determined I would be safe to wait a few days for the procedure.

I don't take being able to walk at the altitude where I live for granted.  I am grateful I am able to go for my daily walks and enjoy the beauty of the world around me.  Today, the sky was as blue as it could be.  I never tire of looking at the rock formations near my home.  They fascinate me.  They remind me just why I love to live where I do.  My marmalade cat rock (I love her) looks down on me as I walk by her, and seems to say, "I'm happy to see you out and about today."  (She is the rock formation on the top right.)  The table rock on the lower right is still waiting for one you to come and join me for a tea party on her flat surface.

I never could have made it through the bouts with my health that I have had without the guy by my side, my dear and greatly loved husband.  It is so good to walk through this life with him.  I so love when we go on walks together.  Today, I said, "I love where we live," as we sat on our patio after our walk.  With my camera, I captured this laugh on his face when he brought up my one complaint about where I live, "Except for crawlspace in the basement."  Hey, I'd probably live in crawlspace with the guy, but don't tell him that.  He keeps me laughing.  He keeps me keeping on.

I can't forget how much I love my other loyal companion.  He also is always at my side.  (Except when his master is home.  Then he is by his side.)  I love my Boston boy too.

Today, was such a beautiful day.  The sun was shining.  The sky was blue.  My man was by my side.  Even the daffodils I planted around our new patio last fall were blooming.

On this glorious spring day, I was able to walk 1.9 miles, gaining 137 feet in altitude at an altitude of over 6,600 feet.  My average heart rate was 115 BPM.  Look at this cool map that shows my route.  (Thank you Jim for my Apple watch which tracks such things.)  

I could do this because of that change of heart I had two years ago.  That is something to celebrate.  

A Change of Heart

I’ve had a change of heart.

The beating of my heart had become more and more erratic.

Now, I have a 

pacemaker

 to keep things a bit more 

steady.

I’m learning to align

my mind and emotions 

with my body 

while it acclimates to a new and different heart rhythm pattern,

one more orderly,

one not yet understood.

The medical notes from the recent X-ray read:

A left subclavian transvenous bipolar pacemaker has been inserted. 

Leads project over the region of the right atrium and right ventricle.

 The notes go on to say I have a new bipolar pacemaker.

It all seems a bit surreal.

I wonder at times how those notations became a part of my medical record.

The time had come when I knew things had to change.

I simply could not go on the way things were.

Some hearts found in my study: A pink heart from blogging friends Sandi & Deb, A big heart from Vashon Island, A colorful heart made by my granddaughter Hannah,  a heart from Deb from Catbirdscout, a found heart.

On March 24, after years of irregular heart beats that never seemed to get better, a loop recorder was implanted in a very simple procedure performed by my cardiologist.  Just before the procedure, I was told that this device gave the doctors very good results very quickly.  Basically, the tiny little device, implanted just under the skin over the heart, is set to record those irregular heart beats that occur throughout the day in my heart.  Every night, at midnight, the day’s recording was wirelessly sent from the implanted device to a receiver that situated near my bed.  I felt nothing.  I did nothing.  The device in my body just talked to the device by my bedside.  Amazing.

At 8:00 the next morning, these reports were read by my doctor’s office.  If there were any events that were life threatening, I would be notified.  Of course, if I felt any of these events, I would have notified them!

For some reason, from the end of March until Easter Sunday, my symptoms just kept getting worse and worse.  I had two reactions to allergy shots that caused my heart to go a bit crazy.  In the evening of the day day of the second allergic reaction, thinking I was going to black out, I took my blood pressure.  My heart rate was listed as 48 beats a minute.  “Surely, this is a mistake,” I thought.  I am the girl with the overly fast beating heart.  I don’t have slow beats.  As the night wore one, I became more and more faint and had readings of beats in the 30’s.  My husband insisted I get to the doctor the next day.

On Good Friday, I saw my doctor.  He said the reports were showing that I was having a lot of events, “a lot” he emphasized.  “You have beats in the 30’s,” he said.  Thats a relief, thought I.  I was just sure that suddenly my blood pressure machine was not working, or I was crazy.  “You are showing us that you now have Tachy-brady syndrome.  How do you feel?”    “I feel terrible,” was my response.  I can’t function. I feel faint. I am exhausted.  I’m afraid to drive.”  

He thought we should treat the symptoms systemically for a little while to see if we got positive results.  If not, I was told I’d need a pacemaker.   I was on the low-normal range on potassium.  Knowing the potassium might help sounded reasonable.  I’d try that.  I’m not one to jump to surgery, but to be honest, I’ve heard the pacemaker suggested for too many years, and I was beginning to think it was time.

On Easter Sunday, after going to church, and then to a lovely brunch with my dear husband at the fanciest place in town, The Broadmoor Hotel, I again was faint and nearly blacked out.  My blood pressure was very low.  The exertion of the day had done me in.  At 7:00 that evening, at the insistence of my doctor’s office, I was in the emergency room.  I had a total melt down.  Sobbing to the nurse, I said, “I can’t do this anymore.  I am done.  This has to stop.”  She then told me I must calm down because in that one minute my heart had skipped 30 beats!  I calmed down. I also made a decision.  I decided that I was having surgery for a pacemaker as soon as it could be scheduled.

On Friday, April 10, my good Dr. L., my cardiologist for the past ten years, the one to whom I trust the intricacies of my heart, implanted a pacemaker.  The procedure went well.  It seemed to go quickly.  I awoke to find my kind and supportive husband by my side.  I sent him to eat breakfast while I rested.   Soon, my dear high school girlfriend, KM, was holding my hand and kissing my check while she spoke encouraging words to my heart and prayed for me.  

I came home from the hospital the next day.  I thought I would walk into the hospital, get the pacemaker, walk out, and go on with life without a bit of interruption.  It hasn’t been quite that easy.  True to form, I overdid yesterday.  I attended a tension filled meeting for my HOA.  I’m the secretary.  I thought I HAD to be there.  Wrong.  I then visited for two hours at a friend’s house.  By the time I was home my anxiety levels and stress levels were off the charts.  

The nurse calls everyday.  She says the first week is a rough one for many.  Yesterday, she said a meeting might be good.  It would keep my mind occupied.  The meeting was too stressful.  I should have stayed home.  I’m not handling stress well right now.

I go to get a device check tomorrow.  I took today off.  I have done nothing all day.  I will do the same until I am feeling stronger.

Reflections

The heart is a sensitive organ, and mine appears to be especially sensitive.

Both doctors who have done invasive procedures have said my heart was particularly sensitive to the medical instruments used, more so than the normal patient.

I wonder if the doctors saw the broken part of my heart?

The part that keeps on beating through all the sorrow.

Does a broken heart become more sensitive?

Did they see my strong heart?

The part that is resilient, full of hope, that looks forward to the future.

Did they see that I have a survivor’s heart, one that wants to overcome the hurts of the past while remembering and holding on to the love that remains for the one who is no longer here?

Did they see my loving heart?

The one that is full of so much love for my husband and my children and grandchildren.

The one that is so full of love that I want it to beat strongly so I can fill my days with their joys and sorrows and accomplishments and laughter.

The one that wants to live as fully as possible.

Modern medicine is a miracle.

I now have a computer inside my body that regulates the beats of my heart.

I hope this does not make my heart mechanical.

I’m sure that will never happen.

That little computer will just help smooth things out for me and my heart.

It is hard to wrap one’s head around it all.

I still feel the skipped beats, and the new rhythm pattern is one I don’t quite understand.

Sometimes that makes me very anxious.

I must learn to trust

the device within my heart.

I must learn to trust more fully

 the One who made my heart.

Ultimately, He controls the span of my days.  

Each day I learn anew that I must trust.

Living life fully makes trust easier to come by.

My heart has been subject to an invasive procedure.

I know from experience that this means that I will suffer some emotional side effects.

My husband, my children, my friends have been so supportive as I have prepared for and gone through this procedure that I honestly don’t know what I would do with out them.

Healing is not a liner process.

Some days are better than others.

One must learn to listen the rhythms of the body and the heart and let them work together.

Healing takes time.

I am reminded of the lesson I learned with a head injury in 2012.

Adopt the pace of nature:

Her secret is patience.

~ Ralph Waldo Emerson

A rose from my rose garden:  Pope John Paul II

A lesson from Proverbs:

A joyful heart is good medicine…

Proverbs 17:22

A life verse written out that has been on my reading table for many years:

Be of good courage, and He will strengthen your heart, all you who hope in the Lord.

Psalm 31:24

I borrow a line from a poem by Emily Jane Bronte,

not because I feel that sadness of the poem, but because I think her advice speaks wisdom to me:

Me thinks this heart should rest awhile…

I will not push through life as I am prone to do.

I will give myself time to heal.

Soon,

I’ll be walking much faster and farther,

Soon,

I’ll be able to go over 8,000 feet in elevation again.

Soon,

I will be feeling better than I have for years.

I’ve needed a change of heart.

I think this this change will be wonderful.

I never was good at keeping a beat.

My rhythm has always been a bit off.

That has been changed.

The beat goes on.